Resources about Bleeding Disorders
To learn more about all bleeding disorders, we’ve provided the links below to helpful web resources:
Hemophilia Federation of America
A national organization that assists and advocates for the bleeding disorders community.
http://hemophiliafed.org
National Hemophilia Foundation
Dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research.
http://www.hemophilia.org
Great Lakes Hemophilia Foundation
Dedicated to advancing the quality of life of individuals and families affected by hemophilia or other blood disorders by providing a broad range of services and programs while supporting research to improve care and to find a cure.
http://www.glhf.org
The Hemophilia Alliance
Provides member Hemophilia Treatment Center with resources and services to sustain the Comprehensive Care Model for individuals with bleeding and clotting disorders.
http://www.hemoalliance.org
Advocacy Corner
US House of Representatives Directory http://www.house.gov
US Senate Directory http://www.senate.gov
Patient Notification System
A free, confidential, 24 hour communication system providing information on plasma-derived and recombinant analog therapy withdrawals and recalls.
http://www.patientnotificationsystem.org
Hemophilia Emergency Care
A reference for medical professionals
http://www.hemophiliaemergencycare.com
Centers for Disease Control and Prevention (CDC)
A part of the U.S. Department of Health and Human Services, the CDC is the primary Federal agency for conducting and supporting public health activities in the United States.
http://www.cdc.gov/ncbddd/hbd/hemophilia.htm